Getting our meds and our lives back
Join the fight to make DAP once again available. It is a vital treatment for two very rare, very debilitating, neuromuscular diseases. Sign the petition, learn more about these conditions, and sign up for updates.
3,4 Diaminopyridine or 3,4 DAP is a molecule also known as Amifampridine. It was discovered in the 1980’s and for those with Lambert-Eaton Myasthenic Syndrome (LEMS) and Congenital Myasthenic Syndrome (CMS) it was a miracle. This medication sold under the brand name Ruzurgi gave us a quality of life we had never had before and opened up a whole world of possibilities for us. Ruzurgi was taken off of the market in the US and is no longer available for those over 17 due to a patent dispute. Many patients have lost a lot of their independence, strength, and some their health.